I have been a support volunteer for SOFT UK since 2017. My son was born in 2015 and was diagnosed at 10 days with full Trisomy 13. He survived for 6 beautiful months and 4 days and left me and my family with the best of memories. SOFT UK was a great support to me after I lost my son and I got to know more families in my position. I joined as a volunteer to hopefully help other families that find themselves in my situation and keep my son's legacy going by raising awareness of Trisomy.

If you would like to contact Sonia directly, please email: Sonia.sankoli@soft.org.uk