I'm Chloe and my daughter Penelope was born in 2015 with full Trisomy 18. She lived for 2 years and 6 months, and although Penelope's medical needs were very complex, her life was filled with lots of love, smiles and happy memories which we will cherish forever. Penelope now has 2 younger sisters, Stella and Elsie and I can't wait to tell them how amazing their big sister was. 
I first got involved with SOFT in 2019 when I helped to organise the family day in Northern ireland and have since joined as a support volunteer. My hope is to help other families who find themselves in a similar situation and to keep Penelope's memory alive in doing so.