A diagnosis of Trisomy 13 or Trisomy 18 can feel isolating. Our primary mission at SOFT UK is to ensure families can access support when they need it.
The SOFT UK support line provides a safe, confidential place for anyone whose pregnancy or child is affected by Edwards’ syndrome (also called Trisomy 18) or Patau’s syndrome (also called Trisomy 13). Whether your experience is recent or happened long ago, we aim to support you for as long as you need us.